Resources*
“Alone we can do so little; together we can do so much.”
~Helen Keller
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Spinal Cord Injury & Paralysis
The Christopher & Dana Reeve Foundation offers the Paralysis Resource Guide (PRG), a free, comprehensive 392-page book designed to help individuals living with and impacted by paralysis to lead healthy and fulfilling lives. It can be downloaded or you can send for the hard copy on their site (linked below).
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Parkinson's Disease
The Michael J. Fox Foundation has developed resources to help individuals and families move through the earliest days with Parkinson’s disease (PD) and beyond. “You have Parkinson’s disease.” Four words that come with a diagnosis full of questions and uncertainty. However you choose to start processing, you’re not alone.
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Community
Brainlife.org, Interabled Couples Share How They Make Their Relationships Work. When one partner has a disability, and the other doesn't, or both partners have disabilities, the relationship may face challenges. These couples share how they deal with those challenges with grace and dignity.
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ALS
The nationwide network of ALS Association care teams and other partners provide people living with ALS and their family and loved ones with support in communities across the country.
The professionals in this network offer many care and support programs that were designed with one thing in mind – enhancing quality of life and supporting families impacted by ALS.
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Spina Bifida
The Spina Bifida Association (SBA) supports people with Spina Bifida and their families by:
Advocating for the community and reviewing medical research.
Bringing people together to learn from one another.
Sharing information to help improve quality of life.
Giving health care providers guidance for lifelong care.
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Muscular Distrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, SMA, and related neuromuscular diseases. For 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families.
MDA's mission is to empower the people we serve to live longer, more independent lives.
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American Council for the Blind
You’re not alone in your journey through vision loss and blindness. American Council of the Blind (ACB) welcomes and accepts you. Guided by its members, ACB advocates for equality of people who are blind and have low vision, inspires community, and connects you with education, resources, and each other to support your independence.
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Blood Cancer United
Blood Cancer United supports people affected by more than 100 types of blood cancer through research, advocacy, and patient services. Its mission is to cure blood cancer and improve quality of life for patients and families. By 2040, it aims to help people with blood cancer gain more than one million additional years of life.
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Self-Care for Interabled Couples
Busy schedules can leave little time to care for ourselves or our relationships. Just as personal self-care supports well-being, making time to care for each other can strengthen a couple’s connection. Here are 30 self-care rituals couples can try together.
*“We’ve tried to be as inclusive as possible, while recognizing that no single book can reflect every experience. Above all, we want you to know that you’re not alone on this journey.”
—Waves of Resilience: 12 Principles for Interabled Love
The above links relate to disabilities experienced by couples featured in our book. They are a starting point, not a comprehensive list of disability resources.